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For those Living with Breast Cancer 

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Project 528

Roughly 528,018 young women are living with breast cancer worldwide. 
​Project 528 is a comprehensive global survey to identify and understand the most pressing needs of young women diagnosed with breast cancer, their caregivers, and the healthcare providers that support them. Twenty international organizations are working together to identify gaps in our collective knowledge and craft questions to address them. The survey and its insights will be translated into 8 languages and distributed globally. ​
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Count Me In

Patients’ medical records, tumor samples, and personal experiences hold clues—about which cancers will respond or become resistant to which therapies—that often can’t be found in research labs or clinical trials. Count Me In enables cancer patients anywhere to share their information with researchers everywhere, to help reveal patterns in the data. 85% of US adults get cancer care at smaller centers that take care of the cancer, but don’t do research - so patient's medical records, tumor samples, etc. aren’t shared with researchers. 
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When We TriAL

Black women are 41% more likely to die from breast cancer than white women.
Know the facts. Change the numbers. When black women participate in trials, they make a difference in breast cancer research. If you are a black woman, please check this site out and if you aren't, please share this site with your black friends. It is critical that we get this word out. 
Check out these great resources, too:
Fact Sheet
​The Black Breast Cancer Alliance

Resources specific to Metastatic Breast Cancer


​ (MBC) 

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Susan g. komen's impact series

This resource provides monthly webinars with important topics for people living with MBC and their caregivers. During the free events, you can participate in sessions with leading experts, hear from individuals living with MBC and gather information from wellness experts. You’ll also have the opportunity to ask our speakers questions. Videos of the webinars are available on the website. In addition, you can sign up to receive their monthly email newsletter. I personally like looking through this e-mail every month because it often provides info on the latest research news and clinical trials, as well as reminders about the webinars. 
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Metastatic Trial Talk

This resource provides carefully selected news and features about MBC research with a focus on the latest clinical trials, research, and treatment options for you to share and discuss with your doctor.

This site also includes a breast cancer trial search. You can search as a guest or create a profile to easily view trials that might be a match for you. The trial search is linked to  BreastCancerTrials.org

INFO ON CLINICAL TRIALS

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TrialJectory creates a personalized list of advanced cancer treatments that match your exact diagnosis. Their technology analyzes all relevant treatment options and instantly presents only what is a match for your condition in easy to understand language. Their goal is to remove barriers to becoming a true partner with your oncologist in making decisions about your future.






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Copyright 2023 Allison White
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